Chronic fatigue syndrome (CFS) feels taboo to me because it is, well….weird. Because it just doesn’t seem like a real thing. There’s a certain stigma attached to it. It’s invisible (obviously). There’s no definitive test for a diagnosis. And, for me at least (because it is mild in my case) I often actually feel “fine” and present as “fine” (or more than fine even). Until I’m not. And then I’m really not fine.
It is actually still hard, even for me, to believe that this “chronic fatigue thing” exists, and that I am trapped in its world. To this day, it is extremely hard for me to comprehend what has happened, and continues to happen, to my body. Which is why I’ve taken to affectionately joking with my husband about CFS – my “fake illness”. Because it really does feel unreal.Continue reading But that’s taboo: Chronic fatigue, my fake illness